I went to the pediatric cardiologist with Wren today hoping for some good news. We found out three months ago that she has pulmonary stenosis, but possibly it was going to be mild enough to not require surgery.
Well, the outcome was not what we expected. Apparently the narrowing in her pulmonary valve has gotten worse, not better. And the doctor said that it would get worse as she gets older, and eventually the right side of her heart is going to be working too hard to compensate. (To all my readers with MDs, I hope I’m explaining this correctly). Eventually, she will need surgery to correct this. Probably using a patch instead of a catheter.
I am so grateful for modern medicine to be able to correct this heart defect for her, but I can’t help but be alarmed and upset. I don’t want my baby to have to have surgery. I know, I am a total wimp. I spoke to my dear friend who is a PA in the PICU at a nearby children’s hospital, and she really put it into perspective for me. She said, “I see kids die in my ward, Sylvia. This is easily fixed with surgery. Do not fret, this is nothing.” I can’t help but fret, though. No one wants to kiss their baby good bye while they wheel her into the operating room. Here I am, being maudlin again.
Anyway, we have a follow up appointment when she turns a year old to assess how her heart is doing. The cardiologist wants to wait as long as he can to have to surgery. She has no symptoms now, but the older she gets, the harder that right side of her heart is going to have to work. If you’re a prayin’ man (or woman), prayers for her little heart would be much appreciated. She is a chubby little ball of joy, and we love her so.