Tag Archives: feeding tube

How I got Regina from Fully Tube Fed to Tube Free in 11 Days

I’m sure there is at least one person out there who is dying to know how I did this. No? Oh, well. I’m going to write this anyway. Because it’s what I do. It’s what I live for. To help poor, unfortunate merfolk, like yourself!

As I outlined in this post, due to a series of unfortunate events, Regina ended up being fully tube fed and retching and throwing up if any sort of nipple came near her mouth. Everyone assured me that this would magically stop after she had her open heart surgery. So, I decided to white knuckle it with her tube feeds until then. read more

Regina’s Arrival and NICU Life

So, this happened:

Therese Regina Bass was born on December 28th, 2016, at 8:35 in the morning, 37 weeks gestation, weighing in at 6 lbs 4 oz. Before she was born, we knew she had a pretty serious heart defect and were fairly certain she had Down syndrome. I took one look at her as they held her over the curtain and thought two things: 1) that she most certainly did have Down syndrome; and 2) that she was beautiful. Scott firmly maintains that she is our cutest newborn. If my other kids are reading this some day, I will state for the record that I think all my children are equally cute. But Reggie is pretty darn cute.  read more