Quick Update on Wren’s Heart

Some background on Wren’s heart situation Here, in case you missed it.

The pediatric cardiologist recommended that we take Wren in for EKGs and echocardiograms every six months due to the severity of her heart defect that was discovered at her birth, but not properly diagnosed until she was about six months old. So we have been dutifully taking her every six months and holding our breath as to how the stenosis (narrowing) of her pulmonary artery is faring as she grows.

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Clutching my old doll I had growing up whose eyes would appear open or closed if you put warm or cold water on them. Anyone else had one of these growing up? 

Her original appointment was last week, but we were struck by a coughing plague of epic proportions that culminated in four very sick girls, two weeks worth of serious fevers, and three children with double ear infections. So we delayed it a week.

I asked my social media friends for advice on how to keep Wren calm and still for her EKG and echocardiogram, as the last four times she has spent them wailing and struggling, causing me and the medical personnel much consternation. The experiences have left me a bit shell shocked, and I didn’t feel up to a repeat.  I got SO MUCH good advice, for which I am eternally grateful. And we actually found a combination of calming techniques that worked. I can do another post on that if anyone is actually interested (I doubt it), but the main ingredient was bringing her security blanket that she sleeps with every night.

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The cardiologist said that her EKG looked good (which is a first) and her echocardiogram showed that her heart has improved yet again! Praise the Lord. He said something vague about “the lower the number the better,” and that her number has gone from a 70 at six months to a 41 today! I probably should have asked him what the heck that means, but I was so elated about the good news I wasn’t thinking clearly.  Her right ventricle wasn’t showing any signs of stress and her heart function looked great. He said he felt comfortable enough to push back the heart checkups from every six months to yearly.

Thank you so much for all of the prayers and thoughts. They were a great comfort to me, and really helped me to not be so anxious about my little Wrenna. I’m so proud of her. She walked right in there and out of there with me like a proud little lady. She did so well.

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The cardiologist said that the game plan is to keep an eye on her heart (definitely as she grows and probably for the rest of her life) to make sure things continue to improve or at least not get any worse.

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Eating the pretend cookie Ruthie bribed her with to sit still for pictures for mama. Ruth is such a good little helper. And I’m glad Wren humors her. 

7 thoughts on “Quick Update on Wren’s Heart

  1. Chelsi

    Sylvia, The pulmonary artery takes deoxygenated blood from the right ventricle of the heart and carries it to the lungs to be oxygenated. When you have pulmonary arterial stenosis the artery is narrowed . The narrowed artery is smaller in diameter than it should be therefore causes a higher pressure gradient.Think of it like a garden hose. When you narrow the nozzle at the end of the hose the water comes out faster and you have more water pressure. When you loosen the nozzle the water comes out slower and creates a lower pressure. That’s why her number going from 70 to 40 shows a lot of improvement. Also, if the pulmonary artery gets too narrow,it causes the right ventricle to have to pump a whole lot harder to get the blood through it. That explains why it was good that her right ventricle was functioning normally. I hope this helps you understand it better

    Chelsi

    1. sylvia.hobgood@gmail.com Post author

      Yes! Thank you so much, Chels, that is infinitely informative and makes perfect sense. LOL, I should have called you after the appointment! Love you 😘😘😘😘😘

  2. juliaattheritz

    So glad to hear this news! (Also, your new posts aren’t updating to my Bloglovin- grrr. I realized I was only seeing them when you posted them to Facebook.) Wren is so adorable. She is a mini-Daddy!

    1. sylvia.hobgood@gmail.com Post author

      Darn, it must have messed it up when I switched to self hosted. Sorry! And thank you, friend! Miss you.

  3. Mandi

    That’s wonderful news! I had the exact same doll when I was a little girl and now my Elizabeth who is 6 loves her just like I did!

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